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Introduction

The purpose of this study is to learn more about Fibrous Dysplasia (FD) and McCune Albright Syndrome (MAS). This type of study is known as a Natural History study as we aim to gain a better understanding about the spectrum of FD/MAS. We also want to know if FD/MAS affects how you feel. We will ask you questions about mobility, activities, pain, and fatigue.

Questionnaires

You will be asked to complete questionnaires using a computer (or a paper version if the computer version is not available). It should take you less than an hour to complete all the questionnaires.

To get started

Log in to the application and fill out questionnaires.

Please contact us if you have any questions or concerns.