Skip to main content
U.S. flag

An official website of the United States government

Official websites use .gov
A .gov website belongs to an official government organization in the United States.

Secure .gov websites use HTTPS
A lock ( ) or https:// means you’ve safely connected to the .gov website. Share sensitive information only on official, secure websites.

Because of a lapse in government funding, the information on this website may not be up to date, transactions submitted via the website may not be processed, and the agency may not be able to respond to inquiries until appropriations are enacted.


The NIH Clinical Center (the research hospital of NIH) is open. For more details about its operating status, please visit cc.nih.gov.


Updates regarding government operating status and resumption of normal operations can be found at OPM.gov.


About the Study

Who runs this study?

The Unit on Vascular Malformations at the National Institute of Child Health and Human Development runs the study under the guidance of Dr. Sarah Sheppard. Our study group studies complex lymphatic anomalies with the goal to understand more about these conditions and create better ways to diagnose and treat them.

What is this study about?

The goal of the study is to establish the validity and reliability of the LLIS in Spanish.

What kind of commitment is involved?

To participate in this study, you will not be asked to come to the NIH. You will first be asked to complete an online questionnaire through the Clinical Trial Survey System (CTSS) that will help us confirm eligibility to participate in the study. This will take about 5-10 minutes. Once eligibility is confirmed a telehealth appointment will be scheduled that will take about 30 minutes.

How can I ask questions or ask for help?

Email us at LLIS_NICHD@mail.nih.gov (or click on Contact).We will get back to you in 1 to 2 business days.